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The latest news from The PSP Association.

PSP Association challenges under-reporting in death certificates

Death certificates of those given a diagnosis of Progressive Supranuclear Palsy (PSP) rarely show PSP as the underlying cause.

Tagged as: care and support, east anglia, east midlands, local, north east, north west, professionals, research, south central, south west, west midlands


Give your views to improve national carers' services

Minister for Care Services seeking views, by 20 September 2010, on the key priorities, for the greatest impact on improving carers' lives in the next four years.

Tagged as: care and support, local


Seeking carer of the year, Lambeth

Lambeth Council are seeking their carer of the year

Tagged as: care and support, local, south east


Take part in the RESULT Study

Researchers at the University of Birmingham are looking for people with PSP to volunteer to take part in a research study which aims to improve healthcare services for people with rare neurological conditions.

Tagged as: care and support, local, west midlands


NIAP e-bulletin

The Neurological Information and Access Partnership (NIAP) e-bulletin, July 2010

Tagged as: care and support, east midlands, local, professionals


Online Care Survey

Are you caring for somebody with a neurological condition? If so, a team at King's College London would like your help. They have been commissioned by the Department of Health to try and find a suitable definition for the terms ‘carer' and ‘respite care'.

Tagged as: care and support, cbd, east anglia, east midlands, eire, local, north east, north wales, north west, northern ireland, professionals, scotland, south central, south east, south wales, south west, west midlands


The PSP Association's Draft Research Strategy

The PSP Association's Draft Research Strategy - Your opportunity to have your say on research

Tagged as: care and support, east anglia, east midlands, ireland, local, north east, north wales, north west, northern ireland, professionals, research, scotland, south central, south wales, south west, west midlands


NHS Choices

The NHS website (NHS Choices) now lists information about PSP and CBD.

Tagged as: care and support, cbd, east anglia, east midlands, ireland, local, north east, north wales, north west, northern ireland, professionals, scotland, south central, south east, south wales, south west, west midlands


New drug Trial for PSP

The biopharmaceutical company Noscira is conducting a clinical trial of a new drug, NP-12, as a potential treatment for Progressive Supranuclear Palsy.

Tagged as: care and support, east anglia, east midlands, ireland, local, north east, north wales, north west, northern ireland, professionals, research, scotland, south central, south east, south wales, south west, west midlands


NIAP survey results - improving access to services in Nottinghamshire

Survey results are available from NIAP (Neurological Information and Access Partnership) aimed at improving access to services in Nottingham city and Nottinghamshire county.

Tagged as: care and support, east midlands, local, professionals